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</o:shapelayout></xml><![endif]--></head><body lang=EN-CA link=blue vlink=purple><div class=WordSection1><p class=MsoNormal><span style='color:#1F497D'>Hi all:<o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'>See note below from PCC about the opportunity to participate in a research study.<o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'>Participate if you wish.<o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'>Thx.<o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'>Glen<o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'><o:p> </o:p></span></p><p class=MsoNormal><span style='color:#1F497D'><o:p> </o:p></span></p><div><div style='border:none;border-top:solid #B5C4DF 1.0pt;padding:3.0pt 0cm 0cm 0cm'><p class=MsoNormal><b><span lang=EN-US style='font-size:10.0pt;font-family:"Tahoma","sans-serif"'>From:</span></b><span lang=EN-US style='font-size:10.0pt;font-family:"Tahoma","sans-serif"'> Anne Breakey Hart [mailto:anne.breakeyhart@prostatecancer.ca] <br><b>Sent:</b> January 13, 2016 4:07 PM<br><b>To:</b> anne.breakeyhart@prostatecancer.ca<br><b>Subject:</b> Research Study at John Hopkins University<o:p></o:p></span></p></div></div><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>Hi Everyone,<o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>Happy New Year! <o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>Dr. Michael Brundage is a radiation oncologist in the Kingston area, connected to PCC and a member of our Research Advisory Council.<o:p></o:p></p><p class=MsoNormal>He has invited support groups across the country to participate in a research study that the John Hopkins University School of Medicine is conducting in the US.<o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoPlainText>They are reaching out to men who have experienced prostate cancer for their help with a research project. The overall goal of the project is to develop best-practices for how to let men and their families know about “outcomes” that patients themselves report. <o:p></o:p></p><p class=MsoPlainText><o:p> </o:p></p><p class=MsoPlainText>Patient reported outcomes (PROS) such as quality of life findings are often used in patient care. For example, patients may report their symptoms or their well-being on the day of their clinic visit for their health care team to review. Or, PRO findings from clinical studies may be used to let men know what to expect with new treatments. <o:p></o:p></p><p class=MsoPlainText><o:p> </o:p></p><p class=MsoPlainText>We think that a “picture is worth a thousand words”, and we are examining different ways of displaying PROS to patients and their families. <o:p></o:p></p><p class=MsoPlainText><o:p> </o:p></p><p class=MsoPlainText><b>Can you help by sending out this information to your groups? <o:p></o:p></b></p><p class=MsoPlainText><o:p> </o:p></p><p class=MsoPlainText>Patients are needed to complete a short survey and provide feedback about different ways of displaying PROS. The study has been funded by peer-reviewed research and has been approved by the Ethics Board of Johns Hopkins School of Medicine. Participation is entirely voluntary and all responses are kept completely anonymous and confidential. A survey invitation is attached and can also be found at <a href="http://www.prosinpractice.com">www.prosinpractice.com</a>. <o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal>Thanks very much for your assistance with this,<o:p></o:p></p><p class=MsoNormal>Anne<o:p></o:p></p><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal><b><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>Anne Breakey Hart, CVA<br></span></b><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>Manager, PCCN and Volunteer Engagement | Prostate Cancer Canada<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>Gestionnaire,</span><span lang=EN-US style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0067B1'> Mobilisation des bénévoles </span><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>| Cancer de la Prostate Canada</span><span lang=EN-US style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0067B1'><o:p></o:p></span></p><p class=MsoNormal><b><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>T </span></b><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0070C0'>416-441-2131 ext./poste 229 | <b>E</b></span><span style='font-size:10.0pt;font-family:"Arial","sans-serif";color:#0067B1'> </span><a href="mailto:anne.breakeyhart@prostatecancer.ca"><span style='font-size:10.0pt;font-family:"Arial","sans-serif"'>anne.breakeyhart@prostatecancer.ca</span></a><span style='color:#1F497D'><o:p></o:p></span></p><p class=MsoNormal><a href="www.prostatecancer.ca">www.prostatecancer.ca</a><span style='color:#1F497D'><o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'><o:p> </o:p></span></p><p class=MsoNormal><span style='color:#1F497D'><img border=0 width=312 height=116 id="Picture_x0020_4" src="cid:image005.png@01D14E1C.60609C10" alt="cid:image001.png@01D06C88.6A54F890"><o:p></o:p></span></p><p class=MsoNormal><span style='color:#1F497D'><o:p> </o:p></span></p><p class=MsoNormal><a href="http://www.facebook.com/prostatecancercanada"><span style='text-decoration:none'><img border=0 width=30 height=30 id="Picture_x0020_3" src="cid:image006.png@01D14E1C.60609C10" alt=facebook></span></a><span style='color:#1F497D'> </span><a href="http://www.twitter.com/prostatecancerc"><span style='text-decoration:none'><img border=0 width=30 height=30 id="Picture_x0020_2" src="cid:image007.png@01D14E1C.60609C10" alt=twitter></span></a><span style='color:#1F497D'> </span><a href="youtube.com/prostatecancercanada"><span style='text-decoration:none'><img border=0 width=30 height=30 id="Picture_x0020_1" src="cid:image008.png@01D14E1C.60609C10" alt=Youtube></span></a><o:p></o:p></p><p class=MsoNormal><span style='color:#1F497D'><o:p> </o:p></span></p><p class=MsoNormal><b><span style='color:#0067B1'>Win a custom 2016 Audi S5!</span></b><span style='color:#0067B1'> Order your raffle tickets today for a chance to win a one-of-a-kind car and other great prizes! 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