[Hopespringpcsg] FW: [IceBalls] Some Online PCa Resources

Fri Jun 7 08:15:06 EDT 2013

Hi all:
Below is a list of information sites wrt PCa.
I receive it as I have signed up for info on Cryotherapy wherein the info
comes under the subject "IceBalls".
You may wish to subscribe to or explore selected topics.
Take care,
Glen

-----Original Message-----
From: iceballs-bounces at prostatepointers.org
[mailto:iceballs-bounces at prostatepointers.org] On Behalf Of Nancy Peress
Sent: June 7, 2013 5:19 AM
To: nperess at charter.net
Subject: [IceBalls] Some Online PCa Resources

********** 

The IceBalls mailing list is intended for informational purposes only. Be
aware that much of the material on this list represents the opinions and
interpretations of other patients. Recommendations should NOT be regarded as
professional advice. Conduct your own research and discuss your options with
health care professionals involved in your care.

**********
Most recent update: 3/30/2013 

Please note: These are simply pointers to Internet-based PCa resources, and
should not be regarded as any sort of recommendation or endorsement. 
It's up to you to carefully weigh the information you find, and discuss it
with your own physician.

====================

MAILING LISTS AND FORUMS

Physician To Patient

The purpose of the p2p mailing list is to provide the prostate cancer
patient or other interested parties with information from physicians about
the treatment of prostate cancer. This is a moderated list without the high
volume normally associated with mailing lists or the frequent off-topic
questions. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/p2p

IMPORTANT: 
Every message sent to p2p must contain a Prostate Cancer Digest. 
Instructions for preparing your digest are in the first issue of PCRI
Insights, which you can get in .pdf format here:

http://www.prostate-cancer.org/resource/insights.html

The same instructions are also available as a webpage:

http://www.prostatepointers.org/p2p/pcd.html

====================
NewDx

NewDx offers information and support to those newly diagnosed with prostate
cancer. Experienced PCa patients who want to help the newly diagnosed are
encouraged to join! To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/newdx

====================
The Circle

Support for wives, families, friends, and significant others of men with
prostate cancer -- and, of course, the men themselves. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/circle

====================
SeedPods

A mailing list for those interested in brachytherapy (radioactive seed
implants) as a treatment for prostate cancer. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/seedpods

====================
RP

A mailing list dedicated to the needs and concerns of radical prostatectomy
patients. The sole purpose of this list is to narrowly focus on the concerns
of those who have already had an RP or have selected RP as their treatment.
To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/rp

***NEW***  The RP-Help Wiki
A compendium of knowledge and help from longtime RP subscribers. 
Please first subscribe to RP and then get the wiki URL from the RP welcome
message.

====================
IceBalls

A mailing list offering information and support to those interested in
cryosurgery for prostate cancer. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/iceballs

====================
CHB

CHB offers discussion and support for patients interested in any form of
hormonal blockade. This includes: orchidectomy, medical hormonal blockade
[lupron, flutamide, proscar, etc.] as well as food supplements such as
PC-SPES. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/chb

====================
EBRT

EBRT offers discussion and support for patients interested in any form of
radiation therapy for prostate cancer. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/ebrt

====================
WW

WW offers discussion and support for patients interested in Active
Surveillance as a strategy for the management of prostate cancer. To
subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/ww

====================
Prostate Cancer and Intimacy

PCAI is a mailing list for frank and open discussion of the sexual issues
surrounding PCa. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/pcai

***NEW***  The PCAI Wiki
A collaborative treasure trove of knowledge and help from longtime PCAI
subscribers. Please first subscribe to PCAI and then get the wiki URL from
the PCAI welcome message.

====================
Spirit

Spirit is a mailing list for those who want to share spiritual support as
they live with prostate cancer. To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/spirit

====================
Promise

A mailing list for those grieving a loss. Also offers help and support to
those with a spouse, partner, or family member in the last stages of life.
To subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/promise

====================
Prostate Problems Mailing List (PPML)

An unmoderated forum which discusses problems and treatments related to
men's prostate gland. This is a broad-based, comprehensive forum with
extremely knowledgeable participants. To subscribe, go to:

http://ppml-info.org

====================
The "New" Prostate CancerInfoLink Social Network

(http://prostatecancerinfolink.ning.com)

====================
C2P -- Coach-to-Player

PC-REF's mailing list where patients and family can ask PCa questions of
Israel Barken and other doctors.  To subscribe, go to

http://www.pcref.org/c2p.php

====================
Advanced Prostate Cancer

A group for men and their families with apc at:  

http://health.groups.yahoo.com/group/advancedprostatecancer/join 

====================
Prostate Cancer Under 50

A group for men diagnosed with prostate cancer age 50 and under, and their
families at:  

http://health.groups.yahoo.com/group/prostatecancerunder50/join

====================
PCa_Women

A group for the spouses and partners of men with pc at: 

http://health.groups.yahoo.com/group/PCa_Women/join

====================
A Prostate Cancer Forum for Ladies Only

A safe place is provided to help deal with medical, emotional and life style
changes that accompany the diagnosis of Prostate Cancer.

To register and participate, go to:
http://www.ladies-prostate-forum.org/ladies/

====================
Prostate Cancer Action Network

A forum for discussing important issues affecting the care and treatment of
prostate cancer survivors, and ways to bring about needed change. To
subscribe, go to:

http://www.prostatepointers.org/mailman/listinfo/pcan

====================
Prostate Cancer and Gay Men

To subscribe, go to:

http://health.groups.yahoo.com/group/prostatecancerandgaymen/

====================
Humor And Healing

HAH is a humor list for the online PCa community, more intimate and friendly
than the big Internet joke lists. To subscribe, go to

http://www.prostatepointers.org/mailman/listinfo/hah

====================

PROSTATE CANCER WEB SITES

Resource Kit for Making Prostate Cancer Decisions
http://www.ustoo.org/newpatientkit

Books of Interest
http://www.ustooevents.org/site/PageNavigator/Us_TOO_Books_Of_Interest

Prostate Pointers
http://www.prostatepointers.org

Information for the newly diagnosed
http://www.prostatepointers.org/newlydx.html

Us TOO International Prostate Cancer Education & Support Network
http://www.ustoo.org

Prostate Cancer Profiler
https://www.cancerprofiler.nexcura.com/Secure/InterfaceSecure.asp?CB=51

Prostate Cancer Research Institute (PCRI) http://www.prostate-cancer.org/

Prostate cancer acronyms and abbreviations: 
http://www.prostatepointers.org/prostate/ed-pip/acronyms.html 

Prostate cancer glossary of terms:
http://www.prostatepointers.org/prostate/ed-pip/glossary.html 

Information provided by Nicholas Bruchovsky, MD
http://www.prostatepointers.org/bruchovsky 

Information provided by Fernand Labrie, MD
http://www.prostatepointers.org/labrie 

Information provided by Robert Leibowitz, MD
http://www.prostatepointers.org/prostate/leibowitz 

Information provided by Charles Myers, MD
http://www.prostatepointers.org/cmyers 

Information provided by Jonathan Oppenheimer, MD
http://www.prostatepointers.org/virtual_lab 

Information provided by Israel Barken, MD
http://www.prostatepointers.org/barken

Physician to Patient
http://www.prostatepointers.org/p2p

SeedPods
http://www.prostatepointers.org/SeedPods/ 

IceBalls
http://www.prostatepointers.org/iceballs/

The PCAI list of ED specialists
http://www.prostatepointers.org/pcai/ed.html

The Circle
http://www.prostatepointers.org/circle/ 

Organize your PC digest:
http://www.prostatepointers.org/p2p/pcd.html

Tom Feeney's Watchful Waiting page:
http://www.prostatepointers.org/ww/ 

Search prostatepointers.org
http://www.prostatepointers.org/search_form.html

ProstateVideos.com
Prostate cancer education provided by Dr. Gerald Chodak
http://www.prostatevideos.com/

Prostate Cancer Stages
http://www.phoenix5.org/staging.html

"Comprehensive Management of Prostate Cancer" by Charles E. Myers, MD -- PCa
Medical Oncologist http://www.hormonerefractorypca.org/myers425.htm

National Prostate Cancer Coalition
http://www.pcacoalition.org/

PAACT
http://www.paactusa.org/

American Urological Association PCa information
http://www.urologyhealth.org/adult/index.cfm?cat=09

National Cancer Institute's Prostate Cancer Home Page
http://www.cancer.gov/cancerinfo/types/prostate

The Hypertext Guide to Prostate Cancer
http://www.hypertext.org

A Primer on Prostate Cancer
http://www.phoenix5.org/Basics/DPprimer0918.html

Phoenix5
http://www.phoenix5.org/

Prostate Cancer InfoLink
www.prostatecancerinfolink.net

PPML website
http://ppml-info.org

PPML archives
http://listserv.acor.org/archives/prostate.html

Urologychannel PCa resources
http://www.urologychannel.com/prostate/cancer/index.shtml

Prostate Cancer Research and Education Foundation (PC-REF)
http://www.pcref.org

MultiGraph: your medical history in graphic form, free from PC-REF Contact
John Fistere at JFistere at cox.net
http://members.cox.net/jfistere/MultiGraphIntro.htm

Ask Dr. Barken: FREE, weekly Telephone Call-in Show
Date:  Every Tuesday, 6 pm Pacific, 9 pm Eastern
Call:  TOLL FREE 1-877-727-3301, (1-877-PCREF-01) Listen Later:  Past shows
are archived at www.pcref.org

Prostate Cancer Mission
http://pcmission.blogspot.com/

WellnessWeb Prostate Cancer Center
http://www.wellnessweb.com/PROSTATE/prostate.htm

Center for Prostate Disease Research
http://www.cpdr.org/

Patients Helping Patients
http://www.prostate-help.org/

You Are Not Alone
http://www.yananow.net/

What Every Man Should Know About Prostate Cancer
http://www.yananow.net/USAMan.htm

Advice To The Newly Diagnosed
http://www.yananow.net/newbyadvice.htm

What Every Doctor Who Treats Male Patients Should Know
http://www.yananow.net/DonnasDoctor.html

Malecare: Multi-lingual website of national nonprofit prostate cancer
support group network http://www.malecare.com

Advanced Prostate Cancer
Joel Nowak's advanced prostate cancer treatment and advocacy blog
http://www.advancedprostatecancer.net

Prostate Cancer Advocacy
Kathy Meade's advocacy blog
http://www.prostatecancerblog.org

Living with Prostate Cancer
Leah's blog about living with men with prostate cancer
http://www.prostatecancerblog.net

Chuck Maack's Observations
Help from a patient advocate and mentor
http://www.theprostateadvocate.com 

Prostate Cancer Africa
http://pcafrica.wordpress.com/

Prostate Cancer Canada Network
http://prostatecancercanada.ning.com/

Prostate Cancer Caribbean
http://pccaribbean.wordpress.com/

Prostate Cancer Latin America -- in Spanish
http://cplatinoamerica.wordpress.com/

Living with Prostate Cancer Foundation -- in Hebrew Contact with 8 leading
doctors, a mentor system, support groups and workshops.
http://www.lwpc.org.il/

Florida Prostate Cancer Network
http://www.florida-prostate-cancer.org/

Prostate Cancer Coalition of New Jersey
http://www.pcc-nj.org/

North Texas Prostate Cancer Coalition
www.ntxpcacoalition.org

PCNG's 100 Prostate Cancer Links
http://pcngcincinnati.org/links/index.htm

Brotherhood of the Balloon -- Proton Treatment Info and Support
http://www.protonbob.com/proton-treatment-homepage.asp 

PSA Rising Magazine
http://www.psa-rising.com

Chemocare.com
http://www.chemocare.com

Sexual help for couples after prostate disease http://www.renewintimacy.org/
http://www.LovingAfterCancer.com 

Surviving Prostate Cancer Without Surgery
http://www.survivingprostatecancerwithoutsurgery.org/

Prostate Cancer Action Network
http://www.prostatepointers.org/pcan/

National Physician & Family Referral Project -- PCa in African-American Men
http://npfr.50hoops.org

Powerful search engines and tools:
Pubget -- http://pubget.com/site/search
Pubmed search -- http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Google -- http://www.google.com
Google Scholar (search for papers) -- http://scholar.google.com/

=-=-=-=-=-=-=

IceBalls and Prostate Pointers online discussion groups are an education and
support resource provided by Us TOO International Prostate Cancer Education
& Support Network.  

For additional information, brochures, and resources, visit the Us TOO
website:  http://www.ustoo.org 

Find an Us TOO support group chapter near you
http://www.ustoo.org/Chapter_NearYou.asp?country1=United States 

Us TOO HotSheet monthly newsletter
http://www.ustoo.org/Hot_Sheets.asp 

Us TOO Chapter NEWS
http://www.ustoo.org/ChapterNews.asp 

Prostate Cancer News You Can Use
http://www.ustoo.org/Prostate_Cancer_News.asp

Free prostate cancer education and awareness materials
http://www.ustoo.org/freematerials

Help continue the Us TOO Prostate Pointers support community -- Us TOO
receives no outside support to cover moderation and technical support
services http://www.ustoo.org/DonateNow 

=-=-=-=-=-=-=
More about cryosurgery at http://www.prostatecancer.com and
http://www.prostatepointers.org/iceballs
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