[Hopespringpcsg] FW: Canadian Cancer Survivor Network April 2014 Eletter

Mon Apr 28 14:34:47 EDT 2014

Hi all:

FYI

See newsletter below.

Take care,

Glen

From: Jackie Manthorne [mailto:jmanthorne=survivornet.ca at createsend1.com] On Behalf Of Jackie Manthorne
Sent: April 28, 2014 1:40 PM
To: Glen Tolhurst
Subject: Canadian Cancer Survivor Network April 2014 Eletter

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CCSN April 2014 Eletter

The Canadian Cancer Survivor Network (CCSN) works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.

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Advocacy Overview: Shaping the Advocacy Agenda, May 8, 2014

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This free introduction to advocacy will interest patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.

Most cancer patients and survivors feel there are some aspects of their cancer care and post cancer experiences that could be improved but do not know how to go about it.

Bring your questions and join us for what will be an interesting and motivating webinar!

In this webinar:

*	You will be provided with an overview of advocacy and why it is important to use advocacy to make change.
*	You will be introduced to the step-by-step process to create an actual advocacy plan that you can then use in support of your issues.
*	You will understand better how to use advocacy tools specifically in the context of interacting with governments.
*	The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.

Take this opportunity to obtain insight and information from Ryan Clarke, the President of Advocacy Solutions, who is committed to providing a voice to organizations and individuals through the development and implementation of impactful advocacy strategies. Ryan has spoken about advocacy across Canada and internationally, teaching and training thousands of people how to make their voices heard.

How to register

To participate, please register first by sending an email to mforrest at survivornet.ca. We will then email you the link for participating in the webinar and login instructions.

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CCSN president & CEO Jackie Manthorne addresses the Economic Club of Canada

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Jackie Manthorne spoke on the topic What cancer patients want at the Economic Club of Canada in Toronto on April 14, 2014.

Manthorne explained that in 2013, the Canadian Cancer Survivor Network conducted a members’ survey in which patients were asked what they wanted, and then went on to speak about the responses and the conclusions we can draw from these responses.

"Overall," Manthorne said, "patients told us that they were concerned about the physical side effects of treatment and surgery and psychological or mental health issues; changing family dynamics; financial issues and difficulties transitioning back to work; and the fear of cancer spreading or coming back."

Click here <http://ccsn.createsend1.com/t/r-l-xykjtkl-tiliitlrdd-h/>  to read Manthorne's Economic Club speech.

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SOMETIMES, IT’S MORE THAN JUST A COFFEE

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 The courage and determination of cancer survivors is an inspiration to us all.  June 1st is National Cancer Survivors Day, and that day and the week after, the Canadian Cancer Survivor Network (CCSN) will honour survivors who are living with and beyond cancer.

It’s simple. Just put on a pot – or three! – of coffee or tea, invite colleagues and friends to join you, ask guests to put in a toonie (or more), and you’re done!

Get started now. Email participate at survivornet.ca and say “count us in” to obtain the registration form for your coffee party, promotional materials for your bulletin board and newsletter and more ideas for a fun coffee break.

Take time to honour a cancer survivor. Participating companies should email their logo to participate at survivornet.ca for recognition on CCSN’s website, www.survivornet.ca.

CCSN works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.

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Opportunity to be part of a video about metastatic prostate cancer

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The Canadian Cancer Survivor Network has been working with Janssen Inc. on the development of a website for men living with metastatic prostate cancer. There is a section of the website that will focus around “What Matters to You” which will house information about advanced prostate cancer and provide visitors with unique educational tools to help them make more informed decisions.

To help support this website, Janssen is looking for men living with advanced prostate cancer who are willing to share their personal experiences in a short video that will be used as content for the website to educate others going through similar situations, and also as part of a larger video to encourage men and their loved ones to visit the website.   

Details:

WHAT: Film a short interview about the participant’s life with advanced prostate cancer.

WHERE: The video crew would visit you at home.

WHEN: They are hoping to film participants during the weeks of May 5 and 12, but will certainly work around your prior commitments.

WHO: You and possibly a loved one.

TIME COMMITMENT: They should only need one to two hours of your time.

Please get in touch with Jackie Manthorne at jmanthorne at surivivornet.ca if you are interested in being part this video, and please pass this info to anyone you think might like to take advantage of the opportunity.

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Join CCSN's work on asbestos!

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It is estimated that currently about 125 million people in the world are exposed to asbestos at the workplace. According to World Health Organization <http://ccsn.createsend1.com/t/r-l-xykjtkl-tiliitlrdd-k/> , (WHO) estimates, more than 107,000 people die each year from asbestos-related lung cancer, mesothelioma and asbestosis resulting from occupational exposures. One in every three deaths from occupational cancer is estimated to be caused by asbestos. In addition, it is estimated that several thousands of deaths can be attributed annually to exposure to asbestos in the living environment.

You can help raise awareness about the dangers of asbestos by joining CCSN's Asbestos and Mesothelioma Advisory Council. To become a member, contact Jackie Manthorne at jmanthorne at survivornet.ca.

For additional information:

*	Check CCSN's website section on asbestos and mesothelioma <http://ccsn.createsend1.com/t/r-l-xykjtkl-tiliitlrdd-u/> .
*	Read our Asbestos and Mesothelopma Blog <http://ccsn.createsend1.com/t/r-l-xykjtkl-tiliitlrdd-o/> .
*	Follow our asbestos and mesothelioma Twitter page @CanadianMeso.

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Did you miss CCSN's webinar on how to maximize your social media and website to promote change? Watch the archived webinar!

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Are you interested in starting or improving your website and social media accounts?  Do you want to learn more about how to promote your cause online?

Watch CCSN's archived webinar on how to maximize your website and social media to promote change, presented by CCSN's own social media and website expert, Matthew Handy!

In this webinar, you will learn:

*	How to define your goals for online advocacy.
*	How to plan and execute strategies to meet those goals.
*	The inner workings of popular social media websites, like Twitter and Facebook.
*	How to design and promote your website.
*	How to use tools and applications to streamline your social media experience.

Don't miss this opportunity to discover how to promote change online! This webinar is an excellent opportunity to gain insight into social media strategies to build your online following and help promote your cause.

Matt has been with the CCSN for nearly one year, developing and implementing social media and website strategies. He is currently finishing his undergraduate degree in communications at Carleton University.

Watch the archived webinar here <http://ccsn.createsend1.com/t/r-l-xykjtkl-tiliitlrdd-b/> .

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Meet one of our new partners! Anal Cancer – A Bum Rap: Anal Cancer Support Group

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The Anal Cancer Patient & Family Support Group A Bum Rap, located in Ottawa, Canada.

If you need a hand to hold, a shoulder to cry on and a confidante who KNOWS WHAT IT'S LIKE to have been diagnosed with anal cancer, gone through the intensive treatments....and is surviving and thriving...then please contact us. We offer email and phone support... and face to face support if you live close to one of our team.

If you are an anal cancer survivor and you are willing to share your experiences with other anal cancer patients please contact us and become one of our team.

If you are a medical professional involved in anal cancer research/screening/treatment and would like to write occasional columns for us to add to our website and/or be a guest speaker...please contact us.

Please feel free to contact us...we will be keeping all your information fully confidential.

You can find us:

*	Facebook at www.facebook.com/AnalCancerABumRap.
*	Twitter @ABumRap.
*	http://www.analcancer-abumrap.com/.

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Canadian Cancer Survivor Network
1750 Courtwood Crescent, Suite 210
Ottawa, ON K2C 2B5
Telephone: 613-898-1871
Email: info at survivornet.ca
Website: www.survivornet.ca

Twitter pages
@survivornet.ca
@bestbreastnews,  which concentrates on information on breast health and breast cancer
@prostatepost, which concentrates on information on prostate cancer
@canadianmeso, which is about asbestos and mestothelioma
@CanadaCINV, which is about chemo-induced nausea and vomiting

Facebook
http://www.facebook.com/CanadianSurvivorNet
Our second FB page is about asbestos and mesothelioma:  https://www.facebook.com/CanadianMeso

Pinterest
http://pinterest.com/survivornetwork/

Blog
Jackie Manthorne's Cancer Blog: http://jackiemanthornescancerblog.blogspot.com/

Weekly newsletter
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