[Hopespringpcsg] FW: CONNECT - Publication 10

Glen Tolhurst glen.tolhurst at sympatico.ca
Mon Jan 5 15:53:14 EST 2015 

Hi all:

Below is the Janssen "Connect" newsletter.

Thx.

Glen

 

From: Janssen Canada CONNECT [JOICA]
[mailto:RA-JOICA-JanCanaCONN at ITS.JNJ.com] 
Sent: January 5, 2015 12:11 PM
To: Janssen Canada CONNECT [JOICA]
Subject: CONNECT - Publication 10

 

 

 


Connect newsletter banner


Engaging Canadians on Health Policy Matters 


December 2014 


Connect speech bubble


Welcome to the December 2014 edition of CONNECT! 


In today's CONNECT we're looking at:

*	Recent developments at CADTH
*	Janssen's recent roundtable on patient involvement in the life-cycle
of new medicines
*	Patient navigators in Canada



As this is our last edition in 2014, the Janssen Community Relations team
would like to wish you all a joyous holiday season and a very Happy New
Year!


Recent Developments at CADTH 


Doctor reviewing drugs data for review.We'd like to update you on some
recent developments at the
<http://www.cadth.ca/en/products/cdr/patient-group-input/update-for-patient-
groups> Canadian Agency for Drugs and Technologies in Health (CADTH):

*	The agency has produced videos on patient input,
<https://www.youtube.com/playlist?list=PL45wcLqNa3c6sYRD7XLM9akLF3y6dbz3W>
which can be viewed on YouTube.
*	The agency has provided tips on patient submissions, encouraging
patient groups to be specific about the advantages and limitations of
current treatments.
*	Elaine MacPhail, who played an important role in establishing
CADTH's process for patient group input, has announced her retirement.
*	Ken Bond, who recently joined CADTH as Director of Strategic
Initiatives, will be responsible for patient engagement at the agency.


Janssen Roundtable on Patient Involvement in the Life-Cycle of New Medicines



Doctor reviewing drugs data for review.In October 2014, Janssen engaged with
national patient group representatives to discuss patient involvement
throughout the lifecycle of medicines. This was an opportunity for our
colleagues with global responsibilities for Janssen and patient group
representatives to exchange on best practices, challenges and potential
solutions on positioning patients at the centre of healthcare decisions.

A number of themes emerged from these discussions, including:

*	patients should be engaged at every step of the lifecycle of
medicines, including early on in the drug development process, the
regulatory process, the health technology assessment (HTA) process, the
funding decisions and real world evidence studies 
*	what value means from the perspective of patients needs to be
captured, as value often means something very different from the perspective
of payers or healthcare providers 
*	patients need to be involved in determining what is important to
them and how this should be measured 
*	the HTA process should be broadened to factor in criteria beyond
drug costs 
*	more transparency is needed on how patient input is factored into
the HTA process
*	more weight should be put on patient input in the context of
reimbursement recommendations 
*	patient groups face many challenges when developing submissions for
HTA processes, including patient literacy issues and difficulties locating
patients due to privacy laws

A more detailed summary of these discussions is available upon request. As
well, if you are interested in sharing your perspectives on this topic,
including any best practices, Janssen would love to hear from you! You can
contact us at: RA-JOICA-JanCanaCONN at ITS.JNJ.com.


Patient Navigators 


In the past decade, patient navigators have become more common in the
healthcare environment in Canada. The role of patient navigators is
typically to help patients understand the healthcare system and access the
care they need. While their responsibilities vary depending on the
navigation program, they can include:

*	scheduling appointments
*	arranging transportation
*	accompanying patients
*	connecting patients to the right doctors or resources
*	health education
*	counselling
*	helping patients access available therapies

In Canada, one of the first navigation programs was established in 2001 in
Nova Scotia in its cancer care system. Given its success, many other
provinces followed suit and patient navigation programs can now be found in
nearly all provinces. These programs typically focus on people living with
cancer and navigators are often nurses by profession. Some jurisdictions,
such as Nova Scotia and Quebec, require that navigators meet certain
requirements before they can take on this role, officially.

Doctor reviewing drugs data for review.Navigation programs are now being
used in areas other than cancer, such as chronic disease management. These
navigators are sometimes called "health system navigators", as they often
help address system-related barriers, such as ensuring better case
management and effective use of resources as well as providing patient
education.

Some navigation programs have evolved towards adopting more culturally
sensitive approaches. For instance, many programs have been introduced
across Canada to serve Aboriginal communities and a program in Toronto was
created specifically for the Chinese Canadian population. Generally, these
navigators are "peers", and can include people from the same culture and
community and even cancer survivors. These navigators are able to address
language and cultural needs or gaps.

Some navigators are specifically focussed on assisting patients with drug
coverage. For instance, the Oncology Drug Access Navigators of Ontario
(ODANO) is a provincial organization that helps maximize the appropriate
funding for cancer patients. These navigators help facilitate drug coverage
by:

*	accessing government funding through programs such as Ontario's
Exceptional Access Program
*	accessing compassionate use programs
*	finding other reimbursement programs for unfunded drugs

Recently, the Canadian Cancer Action Network (CCAN) hired a Patient Health
Technology Assessment Navigator to assist patient advocacy groups in
navigating the pan-Canadian Oncology Drug Review (pCODR) process. This
ongoing pilot project, which is a first in Canada, is meant to provide
patients groups with the required support to optimize their patient input
submissions to pCODR, as well as develop, identify and support opportunities
for patient and caregiver involvement in the pCODR process.

Finally, family members and caregivers also play an important navigation
role by providing emotional support, accompanying the patient through his or
her journey and advocating for patients when needed. They can also help
optimize the role of professional patient navigators by providing them with
information on patient preferences and pushing for better and more
coordinated services when necessary.



Engaging Canadians logoEngaging Canadians on Health Policy Matters

If you wish to subscribe to this newsletter,
<mailto:janssencanadaconnect%40its.jnj.com?subject=Subscribe%20to%20Connect%
20newsletter> CLICK HERE! 


Janssen logo


If you wish to unsubscribe to this newsletter, CLICK HERE.
<mailto:janssencanadaconnect%40its.jnj.com?subject=Unsubscribe%20to%20Connec
t%20newsletter>  

 

With thanks,

Wendy Gerhart 
Community Relations 
Janssen 
Office: 705-322-9757 / Cell: 705-715-2162 
Email: wgerhart at its.jnj.com 

cid:image001.png at 01CB97B3.19C21100

 

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