[Hopespringpcsg] FW: Canadian Cancer Survivor Network November Eletter x1

Tue Nov 3 16:33:28 EST 2015

Hi all:

See below for CCSN e-letter.

Thx.

Glen

From: Canadian Cancer Survivor Network [mailto:info=survivornet.ca at mail162.atl81.rsgsv.net] On Behalf Of Canadian Cancer Survivor Network
Sent: November 3, 2015 12:11 PM
To: glen.tolhurst at sympatico.ca
Subject: Canadian Cancer Survivor Network November Eletter

Welcome to the Canadian Cancer Survivor Network's monthly newsletter! 

 <http://us8.campaign-archive2.com/?u=318d4e052fdd9593317146113&id=d6588341f9&e=79f909daf9> View this email in your browser 

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In this issue... 

*	M <> elanoma portal <> 
*	Biologics  <> & Biosimilars webinar
*	Louise Binder joins CCSN <> 
*	A Seat at the Table <> 
*	Watch our past webinars <> 

CCSN November 2015 Eletter

The  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=5ecf6ad301&e=79f909daf9> Canadian Cancer Survivor Network (CCSN) works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer. CCSN engages in and encourages research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.

Increased melanoma diagnoses basis for new melanoma portal 

Ottawa - November 3, 2015: The Canadian Cancer Survivor Network is pleased to announce the launch of its newest website portal on melanoma <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=137bd79e58&e=79f909daf9> .

Approximately 6,500 Canadians are diagnosed with melanoma annually, and this number increases every year.  For those dealing with this type of cancer, the journey from diagnosis to treatment and management of the disease is rarely a road travelled alone. Spouses, partners, children, extended family, friends and even colleagues may share in the burden of this life-changing disease.

The Canadian Cancer Survivor Network (CCSN) recognized the heavy burden a diagnosis melanoma places not only on those who are diagnosed with it, but on their families and extended support networks. In response, CCSN has created an online portal recognizing and addressing the experience of melanoma, whether in its early or more advanced stages.

"It is critically important to address the information needs and concerns of melanoma patients and their families,” said Jackie Manthorne, President and CEO of the Canadian Cancer Survivor Network. "Each patient will have his or her own experience of melanoma. Aside from purely medical considerations, the journey includes many practical decisions and adjustments. Each of these changes has the potential to impact those closest to them. Providing families and other caregivers a place to find reliable information they can relate to, and a place to connect, can help alleviate some of the anxiety associated with a melanoma diagnosis.”

About the Portal

The Melanoma Portal provides a trusted and accurate source of melanoma information – and connection. Like the spokes of a wheel, sections on the portal centralize information on the diagnosis and treatment of melanoma, provide information and resources on financial planning and address the issues that caregivers face.
The portal includes the following sections: 

*	About Melanoma
*	Prevention
*	Risk factors, Signs and Symptoms
*	Diagnosis
*	Treatment of Melanoma
*	Living Well with Melanoma
*	The Side-Effects of Treatment and Melanoma
*	Mental Wellness
*	Caregiving
*	Financial Information and Resources

Social media platforms including a melanoma Twitter account, @melanomacan <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=881e3036db&e=79f909daf9>  as well as the Canadian Cancer Survivor Network’s general Twitter account, @survivornetca <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=a3d64c4f4e&e=79f909daf9> . 

Free webinar: Biologics & Biosimilars 

 <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=d1266e9dff&e=79f909daf9> 

Our next webinar is titled: What is a biosimilar? All you need to know about the current biologics and biosimilars landscape in Canada, and will take place on Thursday, November 12th from 1:30pm EDT - 2:30pm EST. This webinar will be presented by Karen Burke, Ph.D. of Amgen Canada, Inc.  

The webinar is broken out into two parts:

Part 1:  Biologics - The first part of the presentation will focus on biologics, including an explanation of the high level of precision that is required to produce a consistent biological product each time.

Part 2:  Biosimilars – The second part of the presentation will focus on the growing interest in biosimilars, followed by what we can learn from Europe’s experience. We will also provide Health Canada’s position on biosimilars, discuss key issues surrounding biosimilars relevant to the Canadian market, as well as, the importance of patient safety and patient choice.

Following the presentation, there will be an interactive discussion where listeners will have an opportunity to ask questions and continue the dialogue on biologic medicines and biosimilars. 

 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9279a2bbc1&e=79f909daf9> Click HERE to register for this webinar! 

Louise Binder Joins the CCSN Team! 

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/adb6476f-ccc3-4116-809e-b346cecbfeba.jpg> 

Louise Binder is a lawyer who has been involved in informing the development of health policy and systemic treatment access practices from a patient perspective for more than 20 years. 

She started her work in this area in the HIV community in the early 1990s after her own diagnosis and before effective treatments were available for HIV. She cofounded the Canadian Treatment Action Council (CTAC) in 1996 that successfully ensured access to treatments and quality care for people living with HIV by working with the federal and provincial governments and other relevant stakeholders to enhance drug review and approval systems, pricing policies and access to liver transplants for this community. She wrote a paper on Universal Drug Coverage a decade ago while Chair of CTAC. She had a special interest in women's issues, chairing the Ontario women's organization Voice of Positive Women for over a decade. She has been involved in these issues internationally as well.

Two years ago Louise began similar work in the cancer area and we are happy to announce that Louise is now the Health Policy Consultant for the Canadian Cancer Survivor Network.

She has been recognized by many organizations for her work including receiving an Honorary Doctorate of Laws from her alma mater Queen's Law School, the Order of Ontario from the province of Ontario and two Queen Elizabeth II medals. 

Join our Seat at the Table program! 

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/42934548-a590-4b86-8578-a41e023f18b2.jpg> 

The objective of A Seat at the Table is to increase the number of informed cancer patients, survivors and caregivers sitting on cancer and other health care Boards, committees and research peer review panels where decisions are being made about cancer diagnosis, treatment, post-treatment care and research funding.

We are looking for volunteers to: 

*	Become members of our Patient Engagement Advisory Committee to provide advice and guidance for our A Seat at the Table project.
*	Be nominated to sit on cancer and other healthcare Boards, committees and research peer review panels where decisions are being made about cancer care, including who will receive funding to conduct cancer research.
*	Help us develop curriculum so that patients can be better informed about healthcare and cancer care issues.

Please contact CCSN President & CEO Jackie Manthorne (jmanthorne at survivornet.ca) for the Committee’s terms of reference or to indicate your interest in being nominated to sit on Boards and committees. If you would like to help develop curriculum, please contact CCSN Board Secretary Mona Forrest (mforrest at survivornet.ca). 

Watch past webinars on our YouTube channel! 

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/13eb16d6-7dcc-43f8-ba23-5286bfc2c4fd.png> 

If you missed our webinars earlier this year, they are all available for viewing on our YouTube channel! Click on any webinar title below to start watching. Be sure to  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6d68cc1e88&e=79f909daf9> subscribe to our channel to make sure you never miss another webinar from us! Stay tuned for information on upcoming webinars this year. 

M <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=41b3403321&e=79f909daf9> arijuana for Medical Purposes Regulations: What Do I Need to Know? <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=ee38f02a7e&e=79f909daf9> 
Presented by: Kaivan Talachian, CannTrust

W <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=336506e61f&e=79f909daf9> hat Chronic Disease Advocacy Can Offer Cancer Survivors <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=e586a5f9d7&e=79f909daf9> 
Presented by: Gerry Jeffcott/Rachael Manion, 3Sixty Public Affairs
Panelists: Gail Attara, Gastrointestinal Society; Shelagh Ross, Canadian Congenital Heart Alliance; Linda Wilhelm, Canadian Arthritis Patient Alliance

U <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=e055d2653f&e=79f909daf9> nderstanding Your Health Insurance at Work <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=6dabb49803&e=79f909daf9> 
Presented by: Suzanne Lepage, Private Health Plan Specialist

Developing an Advocacy Plan <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=7eeb6bc14f&e=79f909daf9> 
Presented by: Ryan Clarke, Advocacy Solutions

Federal Election - What Are the Parties Saying About Healthcare  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9164724309&e=79f909daf9> & Cancer?
Presented by: Gerry Jeffcott, 3Sixty Public Affairs
Panelists: Colleen Savage of the Cancer Advocacy Coalition of Canada and Kathy Barnard of the Save Your Skin Foundation 

Follow CCSN on our social media pages! 

Twitter
@survivornetca <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6222a08260&e=79f909daf9>  - our main twitter account of information, news and resources on all cancers
@bestbreastnews <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=f53e4c388e&e=79f909daf9>  - information on breast health and breast cancer
@prostatepost <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=7f776fa2be&e=79f909daf9>  - news, events and resources on prostate cancer
@canadianmeso <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=193662c1ad&e=79f909daf9>  - details on asbestos and mesothelioma
@LungCancerCan <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=5ea352452a&e=79f909daf9>  - focuses on lung cancer news, events and awareness
@CCSNpoli <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=13c68bf87c&e=79f909daf9>  - general, non-partisan talk about the politics of healthcare and cancer care
@MedMarijuanaCan <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=24c9874e04&e=79f909daf9>  - news and information regarding medical marijuana
@s <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b2717e4e9a&e=79f909daf9> tomachcancerca <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=59865b8840&e=79f909daf9>  - information and resources on stomach cancer 
@ <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9650b1ed84&e=79f909daf9> cervicalcanca <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=2980740d57&e=79f909daf9>  - information and resources on cervical cancer
@ <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=2632a42fa2&e=79f909daf9> melanomacan <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4144b7f7c6&e=79f909daf9>  - information and resources on melanoma

Facebook
Click here to 'like' us on Facebook! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=745768dc3c&e=79f909daf9> 
Pages dedicated to asbestos and mesothelioma <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=d24a7327df&e=79f909daf9>  and prostate cancer! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=1d74bdbc4c&e=79f909daf9> 

YouTube
 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b2b25bc3cf&e=79f909daf9> Access all of our recorded webinars & other video content!

Slideshare
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Pinterest
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Blog
Follow our main blog: Jackie Manthorne's Cancer Blog <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b299088db8&e=79f909daf9> 
Follow our blog focused on asbestos and mesothelioma: Canadian Meso Blog <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=ac43514e44&e=79f909daf9> 

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