[Hopespringpcsg] FW: Canadian Cancer Survivor Network January Eletter

Sun Jan 10 16:44:03 EST 2016

Hi all:

CCSN January e-letter is below.

Thx.

Glen

From: Canadian Cancer Survivor Network [mailto:info=survivornet.ca at mail4.suw17.mcsv.net] On Behalf Of Canadian Cancer Survivor Network
Sent: January 8, 2016 11:50 AM

Subject: Canadian Cancer Survivor Network January Eletter

Welcome to the Canadian Cancer Survivor Network's monthly newsletter! 

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In this issue... 

*	Colorectal  <> & Anal Cancer webinar
*	World Cancer Day <> 
*	Trabectedin (Yondelis) survey <> 
*	Mantle Cell Lymphoma survey <> 

CCSN January 2016 Eletter

The  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=26a776cbb1&e=79f909daf9> Canadian Cancer Survivor Network (CCSN) works with patients, survivors, families, partner groups and sponsors on collaborative action to identify and remove barriers to optimal patient care; to ensure access to education and action opportunities and survivor involvement in health care decision-making, and to support evidence-based research on ways promote equal access to early diagnosis, timely treatment and follow-up care.

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Date: Thursday, January 14th, 2016

Time: 1:00 PM EST - 2:00 PM EST

Registration:  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=548e81167a&e=79f909daf9> Click here!

Webinar Information

Don’t miss our first free webinar in 2016 on colorectal and anal cancer on January 14!

Tune in at 1 pm on Thursday, January 14, 2016 to hear Helene Hutchings, chair of Anal Cancer – A Bum Rap: Anal Cancer Support Group and of Hair Donations Ottawa speak about colorectal and anal cancer.

Topics will include:

•    Understanding colorectal and anal cancer, including symptoms, risk factors
•    Treatment options, including chemotherapy, radiation and biologics
•    Preventing colorectal and anal cancer

Following the presentation, there will be an interactive discussion where listeners will have an opportunity to ask questions.

Click here to register for this webinar! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=1616332195&e=79f909daf9>  

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/dd293ba8-f583-46d9-a577-5aa9cc7e74c1.jpeg> 

Presenter Information

Helene Hutchings is the founder of Anal Cancer-A Bum Rap. She was diagnosed with stage 1 anal squamous cell carcinoma just above the ano-rectal junction in January 2010 when she was 43 years old. Currently, she is considered N.E.D (no evidence of disease) and continues to see her medical professionals regularly. She is co-administrator for the on-line, Facebook patient forum ANALWISE, a member of IANS (International Anal Neoplasia Society), founder of Hair Donations Ottawa, and she is also a volunteer with the Colo-Rectal Cancer Association of Canada. 

 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=2ad5e7bc03&e=79f909daf9> Register for this webinar! 

 <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=b42182cf8f&e=79f909daf9> 

 <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=e69e3e6c9c&e=79f909daf9> You are invited! Special Canadian Cancer Survivor Network Open House for recognition and awareness of World Cancer Day February 4, 2016

Drop by CCSN’s office from 3 to 5 p.m. Thursday, February 4, at 1750 Courtwood Crescent, Suite 210.

Escape the winter doldrums! Drop in for some refreshments, hot coffee and warm chat, networking and some brief information on what CCSN is up to!

About the Canadian Cancer Survivor Network 

 <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=fbd723bccf&e=79f909daf9> 

CCSN works to: connect with others to plan action, learn about health system complexities, act to promote best care & healthier survivorship. 

On World Cancer Day 2016, CCSN will focus on the following four themes.

We can... 

*	Mobilize our networks to drive progress. Read more! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=5c0b27e1ea&e=79f909daf9> 
*	Shape policy change. Read more! <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=40ac053b03&e=79f909daf9> 
*	Work together for increased impact. Read more! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=a0af9178ad&e=79f909daf9> 
*	Inspire action, take action. Read more! <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6b6e3f05e1&e=79f909daf9> 

For more about World Cancer Day:  <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=2c36c67755&e=79f909daf9> http://www.worldcancerday.org/
Our website:  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9285428c05&e=79f909daf9> www.survivornet.ca 

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/0a9a4085-2b83-4811-96a0-458fffd4271c.png> 

Participate in the Canadian Cancer Survivor Network Survey on trabectedin (Yondelis)!

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/b34213f3-7b6d-4ca9-a066-4a87c2750987.jpg> 

The purpose of this survey is to provide the Canadian Cancer Survivor Network (CCSN) with insights and perspectives about the use of trabectedin (Yondelis) for the treatment of patients with metastatic liposarcoma or leiomyosarcoma after failure of prior anthracycline and ifosfamide chemotherapy. 

This survey will be open until noon on January 12, 2016, to enable us to prepare our patient evidence submission to the pan-Canadian Oncology Drug Review (pCODR) on January 13, 2016.

You can access the survey at https://www.surveymonkey.com/r/TGSCN62 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=163f62596e&e=79f909daf9> 

Thank you for your participation! 

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/78ec140c-5572-4337-a6b8-d6afc28e57bf.png> 

Share your experiences about living with Mantle Cell Lymphoma in CCSN's survey!

  <https://gallery.mailchimp.com/318d4e052fdd9593317146113/images/b34213f3-7b6d-4ca9-a066-4a87c2750987.jpg> 

The Leukemia & Lymphoma Society of Canada and The Canadian Cancer Survivor Network are seeking patient and caregiver input for the pan-Canadian Oncology Drug Review (pCODR) which will be reviewing an upcoming submission for ibrutinib (Imbruvica) for relapsed/refractory mantle cell lymphoma (MCL).  

We invite you to help the drug submission reviewers better understand what it is to like to live with MCL by sharing your experiences. While this is a Canadian drug review process, survey responses are welcome from people impacted by MCL anywhere in the world. Please forward this email to anyone you know who is diagnosed with or providing care for someone with MCL.

Click on the appropriate survey for your situation. 

1.     Survey for patients diagnosed with MCL https://www.surveymonkey.com/r/9JLNJZ5 <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=9e03556fc4&e=79f909daf9> 

2.     Survey for MCL caregivers https://www.surveymonkey.com/r/9CJFCQP <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=88bc79a2b1&e=79f909daf9> 

The information you provide will remain anonymous. Your survey responses are helpful in informing the pCODR review process.

We greatly appreciate your participation in this survey. If you have any questions or technical difficulties while completing this survey, please contact Sharon Paulse at sharon.paulse at lls.org or 1.866.547.5433 and press 1 for Vancouver. (If you received a similar survey from another organization, you are still welcome to complete this survey, as pCODR allows submissions from various patient organizations.)

The deadline to complete this survey is January 31, 2016. 

Follow CCSN on our social media pages! 

Twitter
@survivornetca <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=ce468a4089&e=79f909daf9>  - our main twitter account of information, news and resources on all cancers
@bestbreastnews <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=a353d4ca66&e=79f909daf9>  - information on breast health and breast cancer
@prostatepost <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=a56ed82c45&e=79f909daf9>  - news, events and resources on prostate cancer
@canadianmeso <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=483ab6a64f&e=79f909daf9>  - details on asbestos and mesothelioma
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@CCSNpoli <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=354c6912bd&e=79f909daf9>  - general, non-partisan talk about the politics of healthcare and cancer care
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@ <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=8f5ee795f1&e=79f909daf9> cervicalcanca <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=67c562931d&e=79f909daf9>  - information and resources on cervical cancer
@ <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=f510d21593&e=79f909daf9> melanomacan <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=062bc6ba8b&e=79f909daf9>  - information and resources on melanoma

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Slideshare
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Blog
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Follow our blog focused on asbestos and mesothelioma: Canadian Meso Blog <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=3ca6ff2664&e=79f909daf9> 

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Canadian Cancer Survivor Network

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