[Hopespringpcsg] FW: Your CCSN October 2020 Newsletter

Thu Oct 15 14:17:23 EDT 2020

Hi all:

See below for the CCSN  October e-newsletter.

Take care & stay well.

Glen

From: Canadian Cancer Survivor Network 
Sent: October 15, 2020 12:20 PM
To: glen46nor at gmail.com
Subject: Your CCSN October 2020 Newsletter

 <https://mailchi.mp/survivornet/your-ccsn-may-2020-newsletter-stay-up-to-date-and-informed-1000398?e=2e211ff547> View this email in your browser

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Canadian Cancer Survivor Network 
October 2020 Update

Cancer Still Waiting... 

"It’s extremely anxiety provoking, and you realize how decisions are being made to focus resources and attention on one viral outbreak at the expense of everything else, including life-saving cancer surgery and treatment, and you have to wonder about which of the two are more pressing and urgent for the medical community to focus on. My greatest fear has been if there were any complications, where would I go to seek help?"

A breast, kidney and pancreatic cancer patient from Ontario. 

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Credit: shutterstock 

When the pandemic was first declared in mid-March, cancer screening services were temporarily suspended in order to direct resources to COVID-19 patients. As CCSN reported in our cross-national survey this summer, 23 percent of cancer patients, 33 percent of caregivers, and 34 percent of pre-diagnosis patients had a routine cancer screening cancelled or rescheduled because of COVID-19. These services are essential for ensuring that patients can have access to timely treatments and prevent their cancer from developing or worsening.

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=855ebcd625&e=2e211ff547> According to surveys conducted by the Canadian Association of Radiologists and the Canadian Association of Medical Radiation Technologists, there was a 50-70% decrease in the delivery of radiology services between March 11 and April 30.  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=5398d6c56a&e=2e211ff547> In Ontario, there was a 98% decrease in mammograms, 88% decrease in Pap tests, and 72% decrease in fecal immunochemical tests, which screen for breast, cervical, and colorectal cancer respectively between mid-March and mid-May compared to the same time period last year. There has also been a  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=657bd305c0&e=2e211ff547> drop in referrals from primary care physicians during the first few months of the pandemic, which means that many pre-diagnosis patients have not been able to see a specialist at all.

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Credit:iStock 

As radiology departments work to manage the growing number of patients on wait lists, they have had to prioritize those with the most urgent cases. However, this does mean that lower priority patients who continue to wait for treatment or screening may experience a progression of their cancer in the interim. In particular,  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=04b38effb4&e=2e211ff547> “there is zero (0) capacity for new P4 scans [which are for those who are low priority and can wait up to 60 days] because of the waitlists that existed before COVID-19.” Additionally, efforts to increase productivity back up to pre-pandemic levels have required additional resources in order to ensure that physical distancing and disinfection protocols are followed.

As many provinces are entering a second wave of COVID-19, there is the possibility that there will be an increase in hospitalizations for COVID-19 patients. However, access to cancer diagnostic services and treatments must remain a priority during any pandemic. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=28d20424fd&e=2e211ff547> Read More 

What Men Told Us: CCSN Prostate Cancer Survey Report 

For Canadian men, prostate cancer is the most commonly diagnosed cancer, with  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=85f8b3fe1f&e=2e211ff547> 22,900 new cases in 2019 alone. Since this disease affects such a large number of people, CCSN conducted a national prostate cancer survey. The purpose of this survey was to help the prostate cancer community better understand the journey that prostate cancer patients, caregivers and survivors experience during their transition from diagnosis, to treatment, to follow-up and finally to survivorship. 137 responses were received, including 59 from prostate cancer patients in active treatment, 64 prostate cancer survivors, and 14 caregivers. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=bca014fef8&e=2e211ff547> 

The CCSN Survey Report captured three overarching themes that resonated consistently throughout the survey results. These were:

Assistance dealing with treatment-induced side effects
The first and most frequent theme to emerge was the respondents’ perceived lack of assistance dealing with treatment-induced side effects, specifically, as it relates to their sexual dysfunction and urinary incontinence.

Provision of supportive care services
Patients highlighted the need for supportive care to handle treatment-induced side effects, including accurate information regarding the management of the disease, and gaining access to emotional support or psychosocial services to help address or alleviate the fears, anxiety or distress surrounding prostate cancer therapies. 

Timely access to treatment and information on the management of the disease, including side effects
Men felt they were not provided with enough information about prostate cancer treatment options from their healthcare professionals, while prostate cancer clinicians assumed patients had acquired enough information. Men felt ill at ease dealing with the treatment options, or rushed through their treatments, and felt unprepared for the severity and duration of treatment side effects.

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In conclusion, the CCSN Prostate Cancer Survey Report suggests respondents had unmet information and supportive care needs, including physical, psychological, sexual and the healthcare system itself. Providing men with supportive care services can bring them out of a sense of isolation and loneliness and provide them with the tools to speak about their disease with ease and confidence. They can then share information and exchange ideas and tips with others going through the journey.

All stakeholders must come together to support the prostate cancer patient and his caregiver in a meaningful and productive manner. The hope is that the CCSN Prostate Cancer Survey Report will serve as the impetus in helping to achieve this goal. 

Below, you can find the full report in both official languages. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=102d2b8e55&e=2e211ff547> Prostate Cancer Report: English 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=765d0b1a53&e=2e211ff547> Prostate Cancer Report: French 

WEBINAR: Prostate Cancer Survey Results

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=7465bccd5d&e=2e211ff547> 

To better understand the implications of this report, check out this webinar! Filomena Servidio, President and CEO of Colorectal Cancer Resource & Action Network, provides an in-depth explanation of the report's key findings.  

Upcoming Webinars 

  <https://mcusercontent.com/318d4e052fdd9593317146113/images/17774fe5-cf74-4f98-83f5-5db72aed2ae1.png> 

Click the link below to find information for all of our upcoming webinars.

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=055ebca98a&e=2e211ff547> Upcoming Webinars 

  <https://mcusercontent.com/318d4e052fdd9593317146113/images/4e8c0b42-8610-424b-9941-5273fbdb101b.jpg> 

CCSN's webinar series on psychosocial issues affecting cancer patients with Dr. Rob Rutledge is already underway! Join us for the remaining webinars in the series, on alternating Wednesday's at 12-1 PM EST. 

CCSN's Remarkable Cancer Survivor’s Guide to:

*	A Healing Diet -  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=885f0c3119&e=2e211ff547> Oct. 28th
*	A Healthy Relationship with Stress -  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=dd00896fba&e=2e211ff547> Nov. 12th**
*	Transforming Emotional Energy for Healing-  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=88299ea1d8&e=2e211ff547> Nov. 25th
*	Nurturing a Spiritual Perspective -  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4cf66322f1&e=2e211ff547> Dec. 9th
*	Radical and Spontaneous Remission, an Oncologists Perspective -  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=efb03a730a&e=2e211ff547> Dec. 16th

Please register for each individual webinar separately! We will upload recordings of each webinar the following day in case you are unable to join us. 

**Please note that the webinar on November 12th will be taking place on a Thursday due to Remembrance Day.** 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=01a5e455f3&e=2e211ff547> Register Now 

Provincial Elections:
British Columbia & Saskatchewan 

Do you live in British Columbia or Saskatchewan?  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=a142317a37&e=2e211ff547> Check out CCSN's election question to the official parties and candidates!

Election Day is October 24th for British Columbians with Saskatchewanians voting just two days later on October 26th.

We understand that COVID-19 is a major concern for many voters. This year, CCSN's question for candidates is based on our recent Leger survey which revealed that the response to the COVID-19 pandemic has led to a crisis in essential cancer care across the country. 

More than half (54%) of Canadian cancer patients, caregivers and those awaiting confirmation of a cancer diagnosis report having had appointments, tests and treatment postponed and cancelled. 

It comes as no surprise that a recent survey found  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4cfe7673f3&e=2e211ff547> more than 6 in 10 Saskatchewanians stated that issues related to COVID-19 will be important in determining their vote in the provincial election. Among those who stated COVID-19 issues will be important to their vote choice, 53% mentioned health care as their top issue.  

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If you have concerns about access to healthcare and cancer care as a result of the COVID-19 pandemic, take a look at our election question and see how the candidates in your riding responded.  

Cancer can’t be cancelled or postponed. The delay and cancellation of cancer care due to COVID-19 has triggered another public health crisis. Cancer care and diagnosis must continue during any public health crisis affecting Canadians to save lives.

If elected, how will your government provide the explicit inclusion of essential cancer care in a second or third wave of COVID-19 and in all crisis and pandemic planning in the future?

We will be updating our website as we receive responses from parties and their candidates. Visit our website to find candidate responses for the  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=7308324225&e=2e211ff547> British Columbia and  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=31cb1aa221&e=2e211ff547> Saskatchewan elections.  

IN THIS ISSUE:  

*	Cancer Still Waiting...
*	What Men Told Us: CCSN Prostate Cancer Survey Report
*	CCSN Fall Webinar Series
*	Zoom Webinar Series on Psychosocial Issues
*	British Columbia and Saskatchewan Elections
*	Patients Say Cancer Can't Wait
*	Share Your Story with CCSN
*	Upcoming Conferences
*	Cancer and Work Survey for Self-Employed Cancer Survivors
*	Call for New Advisory Council Members
*	Missed our Recent Webinars?

Patients Say Cancer Can't Wait 

I was concerned in the beginning as I was going to the hospital, and was worried about catching COVID - 19.  I was very nervous. A Stage 4 breast cancer survivor from Manitoba. 

I understand the need to cancel and delay non-urgent treatments and appointments, but it is very stressful. I worry that my spots of concern
won't be caught in time. I'm also very, very grateful that my surgeries were complete just prior to covid-19 so they didn't get postponed. A Stage 3 infiltrative basal cell carcinoma from Ontario. 

To read more stories from cancer patients, survivors, and caregivers, please see our  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=46ebc7fe04&e=2e211ff547> July and  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=e595a4f6a7&e=2e211ff547> August newsletters. 

Share Your Cancer Story
with CCSN 

Your patient, caregiver or family cancer experiences may be able to help someone currently facing a diagnosis.

If you are willing to share your story, please send an email to Layla at  <mailto:changecancer at survivornet.ca> changecancer at survivornet.ca.   

Breast Cancer Awareness Month

Breast Screening: Getting it Right 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=2a62f78cd7&e=2e211ff547> 

In 2020, an estimated  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b6273f177a&e=2e211ff547> 27,400 women will be diagnosed with breast cancer, which accounts for one quarter of all new cancer cases for women. As October is Breast Cancer Awareness Month, Dense Breasts Canada and the Canadian Society of Breast Imaging created an informational video about breast cancer screening. 

Upcoming Conferences 

Colorectal Cancer Canada
Patient Group Pathway Model to Accessing Cancer Clinical Trials and RWE Methodologies

When: Wed., Oct. 21 @8AM EST

This event will acknowledge the evolutionary trends in the field of precision medicine and provide an insight into the dynamics of patient-centricity and value-based care as adapted to new trial designs.

Learn more and find information about how to register  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=80a0948afd&e=2e211ff547> here. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=949d4b4b51&e=2e211ff547> 

The Walnut Foundation
6th Annual Conference on Prostate Health

When: Sat., Oct. 24 @9AM-2PM

This conference is aimed at providing prostate cancer patients, survivors, their caregivers, and those who may be at risk with valuable information and guidance.

Learn more and find information about how to register  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=a3a4cae8b5&e=2e211ff547> here. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9f766bf58b&e=2e211ff547> 

Canadian Association for Population Therapeutics 

Managing Risk to Improve Health Outcomes

When: Oct. 26 - 27 @ 11AM-4PM

This conference will look at how to move population health forward in an era of uncertainty. 

Learn more and find information about how to register  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b8508ff896&e=2e211ff547> here. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=cbd4e579a9&e=2e211ff547> 

CADTH
2020 Virtual Symposium

When: November 9-10

CADTH invites you to connect with Canadian and international experts for two days of education, information sharing, and networking on the objective assessment and evaluation of health technologies.

Check back for more information  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=74896a733e&e=2e211ff547> here. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=b756d19278&e=2e211ff547> 

World Cancer Series: Europe

When: November 9-13

This virtual conference will bring more than 1000 senior policymakers, clinicians, industry leaders, academics and patient advocates to drive forward the conversation on improving the provision of cancer care in Europe.

Learn more and find information about how to register  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=d4116adfb5&e=2e211ff547> here. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=15fe215177&e=2e211ff547> 

Participate 

  <https://mcusercontent.com/318d4e052fdd9593317146113/images/eb71d52e-a97e-432c-89f3-0679c897de4b.png> 

Cancer and Work ( <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=a5b3f165d8&e=2e211ff547> www.cancerandwork.ca) are seeking self-employed cancer survivors to share their experiences in remaining at or returning to work following cancer and cancer treatments. Your participation will include a 30 to a 45-minute interview which can take place over the telephone, or video conferencing at a time that is most suited to your schedule. Please contact Dr. Christine Maheu at christine.maheu at mcgill.ca <mailto:christine.maheu at mcgill.ca>  to participate in a short interview for one of the research studies with Cancer and Work.  

  <https://mcusercontent.com/318d4e052fdd9593317146113/images/3515fb94-4058-418f-9347-df2cb7358953.jpeg> 

Call for New Advisory Council Members! 

At CCSN, we rely on the input of cancer patients, survivors, caregivers, and family members to drive our programming. One of the primary ways that we collaborate with community members is through our advisory councils. Members of our advisory councils assist with the creation of educational materials, help publicize events, and represent CCSN at conferences. We are currently looking for new members of our advisory councils for the following areas: prostate, lung, and breast cancer. If you are interested in joining please read the  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=1066257219&e=2e211ff547> terms of reference and then fill out the form below. Any questions about joining our advisory councils should be sent to our Community Engagement Coordinator, Layla, at 
 <mailto:changecancer at survivornet.ca> changecancer at survivornet.ca.  

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=bc951c20c3&e=2e211ff547> Advisory Council Application 

Missed our Recent Webinars? 

  <https://mcusercontent.com/318d4e052fdd9593317146113/images/efc3d4b6-cb29-4c4a-b564-0651d8719cf7.png> 

No problem – here’s how to access them

Catch Up Now! CCSN October 8th Webinar - Your Advocacy Toolkit

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=05c888c6c0&e=2e211ff547> 

Join CCSN and Ryan Clarke, President and Founder of Advocacy Solutions, as he provides advice for building your advocacy campaigns. 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=96b60912d4&e=2e211ff547> Slides Available Here.

Catch Up Now! CCSN September 30th Webinar: Getting the Best of Conventional & Complementary Medicine

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=1239fdfbdb&e=2e211ff547> 

Join CCSN and our presenter, Oncologist Rob Rutledge as he provides an overview of cancer, its treatment and how to get the best medical care in this empowering presentation. He follows with practical advice about diverse complementary treatments and techniques, and how to integrate them into your healing journey.

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=87fec094e7&e=2e211ff547> Slides Available Here. 

Subscribe to our  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=56201b7fee&e=2e211ff547> YouTube channel to make sure you never miss a CCSN webinar!
You can also access the slides on  <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4ce041d1fc&e=2e211ff547> SlideShare. 

Agree that Cancer Can't Wait? 

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4a70d2fa23&e=2e211ff547> Tell your Federal Member of Parliament

(Responsible for Pandemic Planning)

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=4a3890cf26&e=2e211ff547> Tell your Provincial Representative
(Responsible for Healthcare)

Because awareness is costly but necessary. Because Cancer can't wait...

 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=eedb8421bc&e=2e211ff547> Donate Now! 

Connect with us on:

Twitter
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6eeb574060&e=2e211ff547> @survivornetca <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=ed1066c21a&e=2e211ff547>  - our main twitter account of information, news and resources on all cancers
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=0615a37f62&e=2e211ff547> @bestbreastnews - information on breast health and breast cancer
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=3a06df72e8&e=2e211ff547> @prostatepost - news, events and resources on prostate cancer
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6e539924ad&e=2e211ff547> @canadianmeso - details on asbestos and mesothelioma
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=51c29648b4&e=2e211ff547> @LungCancerCan - focuses on lung cancer news, events and awareness
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=f4f0526bd7&e=2e211ff547> @CCSNpoli - general, non-partisan talk about the politics of healthcare and cancer care
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=69b8dff230&e=2e211ff547> @MedMarijuanaCan <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=243aae93da&e=2e211ff547>  - news and information regarding medical marijuana
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=c5a215716c&e=2e211ff547> @stomachcancerca - resources and articles on stomach cancer 
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=39f722705d&e=2e211ff547> @cervicalcanca - information and news on cervical cancer and HPV
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9eef0f0f6a&e=2e211ff547> @melanomacan - information and resources on melanoma
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=c2ef5f878e&e=2e211ff547> @LiverCancerCA – news and information on liver cancer
 <https://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=27494864ea&e=2e211ff547> @headandneckcan - everything you need to know about head and neck cancer

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Our mailing address is:
Canadian Cancer Survivor Network
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