[Hopespringpcsg] FW: Canadian Cancer Survivor Network September Eletter

Tue Sep 29 16:49:15 EDT 2015

Hi all:

See below, Canadian Cancer Survivor Network September Eletter.

Informative.

Thx.

Glen

Subject: Canadian Cancer Survivor Network September Eletter

Welcome to the Canadian Cancer Survivor Network's monthly newsletter! 

 <http://us8.campaign-archive1.com/?u=318d4e052fdd9593317146113&id=ad82c02270&e=79f909daf9> View this email in your browser 

 <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=cdb64bc09e&e=79f909daf9> 

In this issue... 

*	Legislative reception <> 
*	Developing an Advocacy Toolkit <> 
*	M <> edical marijuana focus group <> 
*	A Seat at the Table <> 
*	Federal election <> 
*	W <> ebinars on YouTube <> 

CCSN September 2015 Eletter

The  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=878c93211e&e=79f909daf9> Canadian Cancer Survivor Network (CCSN) works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer. CCSN engages in and encourages research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.

CCSN hosts 4th annual Ontario Legislative Reception! 

CCSN was honoured to welcome Premier Kathleen Wynne and leader of the Ontario NDP Andrea Horwath to our annual legislative reception, which was held on September 16 at Queen's Park in Toronto.

Photo: CCSN President & CEO Jackie Manthorne (left) poses with Ontario Premier Kathleen Wynne (right). 

This event highlighted the challenges faced by prostate cancer patients and their families and the increasing number of treatment options that provide a good quality of life while living with this disease. 

The event was once again hosted by Ann Hoggarth, MPP for Barrie, who opened the event. She was followed by Stuart Edmonds, VP of Prostate Cancer Canada, who spoke about access to medication as well as PSA testing.

Photo: Jackie Manthorne (left) & Ann Hoggarth (right) speaking together. 

He was followed by 3 prostate cancer survivors:  David Brittain from Ottawa, Paul Henshall from Brampton, and Mike Preston from Toronto. The three men each related their personal journeys prostate with cancer and how they triumphed over their disease. 

Other keynote speakers included:  

*	John Fraser (photo shown right), MPP for Ottawa South, who provided remarks on behalf of The Honourable Eric Hoskins, Minister of Health and Long-Term Care. 
*	Bill Walker, MPP for Bruce-Grey-Owen Sound, who said a few words on behalf of the Ontario Progressive Conservative Party.
*	France Gélinas, MPP for Nickel Belt, and New Democratic party Critic for Health and Long-Term Care.

CCSN was also pleased to welcome representatives of several other groups to our legislative reception, including Willow Breast & Hereditary Cancer Support, the Ontario Chapter of the Canadian Breast Cancer Foundation, Lung Cancer Canada, and Prostate Cancer Canada.

We would like to thank both  <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=14c2b0463f&e=79f909daf9> Janssen and  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=9452206ae5&e=79f909daf9> Astellas for their support of this reception.

More photos can be viewed on our Slideshare page <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=d7040d2da7&e=79f909daf9> ! 

Left to right: Jackie Manthorne, Louise Binder, MPP France Gélinas & NDP Leader Andrea Horwath 

Free webinar: Developing an Advocacy Toolkit 

 <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=8b87b8b39c&e=79f909daf9> 

Our next webinar is titled Developing an advocacy toolkit, and will take place on Thursday, October 1st from 1:00pm EDT - 2:00pm EDT. This webinar will be presented by Advocacy Solutions president, Ryan Clarke. The webinar will last approximately 45 minutes, with an interactive Q&A period after the presentation. 

Webinar Information

Ryan's presentation will cover the basics of an advocacy toolkit, including: events with politicians, advocacy packages, collective letters, petitions, and postcards. After this presentation, attendees will:

*	Better appreciate the importance of utilizing key advocacy tools to effect change.
*	Understand the practical development and implementation of some of those key tools, including advocacy packages, petitions, postcards and collective letters.
*	Understand the practical steps to hosting a “Day at the Legislature”, one of the most impactful advocacy tools an organization can utilize.

 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=8b1b10c62e&e=79f909daf9> Click HERE to register for this webinar! 

Participate in a focus group about medical marijuana! 

Have you or a relative or close friend used medical marijuana to control pain, reduce nausea from chemotherapy, or increase your appetite? Did your doctor help you access it? How difficult was it to get? Did it work? What could have improved your experience with medical marijuana? 

Focus Groups
Share your experiences or those of your loved ones with the Canadian Cancer Survivor Network by taking part in a focus group about medical marijuana! Your location is not an issue – we will likely hold a virtual meeting so anyone can participate.

Video Testimonials
Doctors are interested to learn about patient experiences. You can volunteer for video taping testimonials, which will only be shared with physicians who want to learn more about this type of treatment.

Please email CCSN President & CEO Jackie Manthorne: jmanthorne at survivornet.ca <mailto:jmanthorne at survivornet.ca?subject=Medical%20Marijuana%20Focus%20Group>  if you are interested in participating in our focus group or helping physicians learn more about medical marijuana by participating in a video testimonial.

You can watch our August 2015 webinar on medical marijuana by clicking here <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=f8ea6efe08&e=79f909daf9> , and learn more by checking out our website portal on medical marijuana by clicking here. <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=70044ee38a&e=79f909daf9>  

Join our Seat at the Table program! 

The objective of A Seat at the Table is to increase the number of informed cancer patients, survivors and caregivers sitting on cancer and other health care Boards, committees and research peer review panels where decisions are being made about cancer diagnosis, treatment, post-treatment care and research funding.

We are looking for volunteers to: 

*	Become members of our Patient Engagement Advisory Committee to provide advice and guidance for our A Seat at the Table project.
*	Be nominated to sit on cancer and other healthcare Boards, committees and research peer review panels where decisions are being made about cancer care, including who will receive funding to conduct cancer research.
*	Help us develop curriculum so that patients can be better informed about healthcare and cancer care issues.

Please contact CCSN President & CEO Jackie Manthorne (jmanthorne at survivornet.ca) for the Committee’s terms of reference or to indicate your interest in being nominated to sit on Boards and committees. If you would like to help develop curriculum, please contact CCSN Secretary Mona Forrest (mforrest at survivornet.ca). 

Federal Election - Help Make Health an Issue! 

As the 2015 Canadian federal election campaign continues, CCSN is asking important questions about cancer & healthcare of all parties and candidates. We will be posting official party responses, as well as responses from individual candidates, so be sure to check back to our website often to see new responses! You can check out all the responses we have received so far by clicking here <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=44c4c3cc10&e=79f909daf9> ! 

If you do not see a response from your local representative, we encourage you to take our questions to them ( <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=d794268c5b&e=79f909daf9> you can copy them by clicking here)! Their responses may be forwarded to Matt at mhandy at survivornet.ca to be posted on our website. 

Watch past webinars on our YouTube channel! 

 <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=6f5f0806f5&e=79f909daf9> 

If you missed our webinars earlier this year, they are all available for viewing on our YouTube channel! Click on any webinar title below to start watching. Be sure to  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=eeeebfac67&e=79f909daf9> subscribe to our channel to make sure you never miss another webinar from us! Stay tuned for information on upcoming webinars this fall. 

M <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=063900eaa1&e=79f909daf9> arijuana for Medical Purposes Regulations: What Do I Need to Know? <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=e695f0ba87&e=79f909daf9> 
Presented by: Kaivan Talachian, CannTrust

W <http://survivornet.us8.list-manage1.com/track/click?u=318d4e052fdd9593317146113&id=2cf4d2d1d5&e=79f909daf9> hat Chronic Disease Advocacy Can Offer Cancer Survivors <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=f7fa951f8b&e=79f909daf9> 
Presented by: Gerry Jeffcott/Rachael Manion, 3Sixty Public Affairs
Panelists: Gail Attara, Gastrointestinal Society; Shelagh Ross, Canadian Congenital Heart Alliance; Linda Wilhelm, Canadian Arthritis Patient Alliance.

U <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=e13b91c090&e=79f909daf9> nderstanding Your Health Insurance at Work <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=ac1197cf93&e=79f909daf9> 
Presented by: Suzanne Lepage, Private Health Plan Specialist 

Follow CCSN on our social media pages! 

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@MedMarijuanaCan <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=ef12df69b7&e=79f909daf9>  - news and information regarding medical marijuana
@s <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=5b8c42bd59&e=79f909daf9>  <http://survivornet.us8.list-manage.com/track/click?u=318d4e052fdd9593317146113&id=392a922e1c&e=79f909daf9> tomachcancerca - information and resources on stomach cancer 

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Follow our blog focused on asbestos and mesothelioma: Canadian Meso Blog <http://survivornet.us8.list-manage2.com/track/click?u=318d4e052fdd9593317146113&id=fdfe9538d3&e=79f909daf9> 

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